Thursday, March 13, 2014

I wanna thank my buddy, Beans, over at Trauma Dad, for a recent post in which he talked about ugly-ness, and also linked to a pretty inspiring Ted talk by Lizzie Velasquez . Lizzie's parting words to the audience was getting them to question what defined them.

I know some people with RA, and other disabilities, really hate to be defined by their disease or disability, but I am not one of them. It certainly isn't ALL that I am, but it is a part of me. It's a part of me visually (in my strange movements, stiffness, limp, or crutches/wheelchair) and it's a part of me emotionally, mentally, intellectually, and every other -y.

It's in everything I do, helping me make decisions about whether I should get up, how I should get up, should I really get up? It's always in the back of my head (and my feet, neck, knees, wrists, shoulders, you get the idea). I have to factor it in to my plans - should I really go for a ski-doo ride on Saturday and Sunday? The answer is yes, by the way. Yes, go for those ski-doo rides, but be prepared to spend Monday, and probably Tuesday, and maybe even Wednesday, on the couch recovering (worth it).

Having this disease can really, really suck, and I often wish I didn't have it. Or, that it was less severe, with less pain, requiring less surgeries, etc. I can get pretty down about it. But, I don't have any problem in using it as defining part of who I am. I am a woman with a disability. The important part, for me, is recognizing that that definition does not make me "lesser than". It just is.

9 comments:

  1. Thanks so much for this. The last paragraph...the whole thing...

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    1. Thanks! I can be a pretty grumpy person in general, but you really have to find the positives in this, or else it's depression-time.

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  2. Nice to see you back Pony. A powerful post that touches on a very important and difficult life choice. Reveal or try to hide. I also voted to reveal. Jeez it was too hard to hide. Yay for ski- doo ride Ra be damned!

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    1. Thank you! Yes, I reached a point where you don't even care who knows, and it's too darn hard to hide anyway!

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  3. Shit yes Steesh! Down but not out, right? Love you lady. Miss you so much.

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    1. Exactly, Beans! Your blogging has inspired me to get back at it. I love the community.

      We miss you guys so much, too! I could use a little friday night hang-out. I even miss our arguing over which crappy movie to watch :)

      Love you!

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    2. I still argue with you, in my heart. Haha!

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  4. Dear Pony,
    Hope you are doing well. Also hope to connect with you via email. Is there an address where I can send you a note? Many thanks in advance.

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